I am a wife to Mike, and mom to PJ, Emily, and James. Due to circumstances beyond my control, I don't know anything about Emily. PJ is making me a grandma later this year! And James just graduated Kindergarten.
On November 11, 2006, I married the love of my life. We've had our ups and downs but we stick with it. It is hard being married to a disabled vet with a TBI and PTSD, but we somehow make it work.
Me, I also have my problems, and that is where TheMarciFactor comes in. I have not one but two rare conditions. In 1994, after a Workers Comp injury, I was diagnosed with Reflex Sympathetic Dystrophy. RSD is also known as Complex Regional Pain Syndrome. This is a very painful disorder, and the way I describe it best is like this:
When you have an injury, your parasympathetic nervous system takes over. This is what controls your flight or fight instinct and it tells your body that it is hurt. In some people (like me) it went
crazy when I got injured. I was diagnosed by a bone scan many years ago. The doctor basically
just told me "you have Reflex Sympathetic Dystrophy" and gave me more pain pills and an AFO
brace. Over the past twenty years, it has steadily gotten worse.
Last fall, it got really painful and my doctor suggested using a wheelchair for school and other places where I would be walking often. So, after about six months of working with insurance and trying to raise the funds for the copay, I finally got my wheelchair.
In 2007, I was rear ended. As a result I have three herniated disks at the C5-C6-C7 level, and a Syrinx (a cyst inside my spinal cord) at T3-T6. Having the Syrinx means that I have what is also called Syringomyelia. This also causes pain and numbness. I have problems with my hands going numb quite often, more on the left than the right.
Overall, I am quite happy with having the wheelchair. My blood pressure has decreased 10 points, and my heart rate has decreased 15 beats a minute...all from not being in pain as much. I'm still learning to navigate my life in a wheelchair, and every day is a challenge. If you have any other questions, please feel free to ask. I'm not an expert in any of this, and I'm learning as I go.